Web of Science:
Care burden and resilience in parents of children with special needs and chronic diseases

dc.contributor.authorAlay, G.K.
dc.contributor.authorKacan, H.
dc.date.accessioned2024-04-03T09:45:28Z
dc.date.available2024-04-03T09:45:28Z
dc.date.issued2024.01.01
dc.description.abstractAim: Comparison of care burden and resilience levels in parents of children with special needs and chronic diseases. Methods: This study, designed with a cross-sectional and relationship -seeking design, was conducted in a Training and Research Hospital in Turkey. Data was obtained from parents of children with special needs (n = 102) and chronic diseases (n = 102) who presented to the outpatient clinic for routine follow-up between October 2022 and February 2023. The consecutive sampling method was used while choosing the sample. The "Descriptive Characteristics Questionnaire," "Zarit Caregiver Burden Scale (ZCB)," and "Resilience Scale for Adults (RSA)" were used to collect data. Data were evaluated using the SPSS 22.0 statistical program. Results: The burden of care in parents differed significantly between the two groups (p < 0.001), the majority of parents of children with chronic diseases (PCCD) had a mild/moderate care burden, and the majority of parents of children with special needs (PCSN) had a moderate/severe level of care. The care burden scores and total resilience scores were found to be higher in the PCSN group, and the care burden scores and total resilience scores were found to be lower in the PCCD group (p < 0.001). Conclusion: This research determined that PCSN showed more care burden and less resilience than PCCD. In this context, it is recommended to regularly monitor the resilience, caregiver burden, and quality of life of caregivers of children with special needs and conduct preventive and strengthening programs. (c) 2024 Elsevier Inc. All rights reserved.
dc.identifier.doi10.1016/j.pedn.2024.02.001
dc.identifier.endpage67
dc.identifier.issn0882-5963
dc.identifier.issue
dc.identifier.startpage61
dc.identifier.urihttps://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=dspace_ku&SrcAuth=WosAPI&KeyUT=WOS:001186322300001&DestLinkType=FullRecord&DestApp=WOS_CPL
dc.identifier.urihttps://hdl.handle.net/20.500.12597/33050
dc.identifier.volume76
dc.identifier.wos001186322300001
dc.language.isoen
dc.relation.ispartofJOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES
dc.rightsinfo:eu-repo/semantics/openAccess
dc.subjectCare burden
dc.subjectChronic disease
dc.subjectChild
dc.subjectParent
dc.subjectResilience
dc.subjectSpecial needs children
dc.titleCare burden and resilience in parents of children with special needs and chronic diseases
dc.typeArticle
dspace.entity.typeWos

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